{"id":13154,"date":"2018-07-31T11:23:22","date_gmt":"2018-07-31T15:23:22","guid":{"rendered":"https:\/\/www.shorebeat.com\/brick\/?p=13154"},"modified":"2018-07-31T11:23:22","modified_gmt":"2018-07-31T15:23:22","slug":"patience","status":"publish","type":"post","link":"https:\/\/shorebeat.com\/brick\/2018\/07\/patience\/","title":{"rendered":"Patience"},"content":{"rendered":"

\"\"<\/p>\n

Patience is a virtue I do not have in spades.<\/p>\n

I say this and laugh, because instead of making list-oriented New Year\u2019s Resolutions this year, I simply asked for patience, happiness and peace. Last year (unfortunately) like this year was very challenging, and really, I was just going for baseline.<\/p>\n

It turns out I\u2019m a work in progress.<\/p>\n

This summer I\u2019ve seen a lot of ups and downs with our boy. At this point, to tell you the truth, we\u2019re not even sure what he has anymore. We have a consult with his neurologist next week, there may be answers,, there may not. Justin seems to make progress, then slips again. It is beyond frustrating not knowing for sure what is going on not because I need a label, but because I don\u2019t know how to treat it.<\/p>\n

Still, there are some things I am immensely grateful for.<\/p>\n

His school has been incredibly patient with all his changes, and once again I am beyond thankful that we made the decision to put him in a private placement all those years ago. His school truly is his second home. We are lucky.<\/p>\n

To my immense relief we are still able to take him places, places he\u2019s loved since we moved here when he was a toddler. I\u2019ve been worried we\u2019d lose that ability to take him out, which has meant so much to him and to me over the years.<\/p>\n

Finally, we\u2019ve seen some of his intrinsic joy return. This aspect of whatever he has has been the most difficult part for me. My boy, despite severe autism and OCD and this new challenge, has always been happy in his core. To see glimpses and periods where this child has returned has meant, well, everything.<\/p>\n

Psychologically I know whatever this new challenge is his progress will not be linear. I don\u2019t honestly know where we\u2019ll be tomorrow, next week, or a few months from now. I guess the truth is none of us knows this, but it is particularly difficult for me because this is my child\u2019s life, the one we\u2019ve sweat blood and tears for for fifteen years to make it good for him.<\/p>\n

I, not so simply, have to wait.<\/p>\n

And I sincerely hope the universe grants me patience.<\/p>\n

For more on my family visit my blog at autismmommytherapist.wordpress.com<\/em><\/p>\n

Follow me on Facebook at Autism Mommy-Therapist<\/em><\/p>\n

<\/div><\/div>","protected":false},"excerpt":{"rendered":"

Patience is a virtue I do not have in spades. I say this and laugh, because instead of making list-oriented New Year\u2019s Resolutions this year, I simply asked for patience, happiness and peace. Last year (unfortunately) like this year was very challenging, and really, I was just going for baseline. It turns out I\u2019m a […]<\/p>\n","protected":false},"author":196,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2},"jetpack_post_was_ever_published":false},"categories":[4,12],"tags":[293,295,294,1637],"class_list":["post-13154","post","type-post","status-publish","format-standard","hentry","category-life-in-brick","category-ocean-county","tag-autism","tag-autism-acceptance","tag-autism-awareness","tag-ocd"],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"","jetpack_shortlink":"https:\/\/wp.me\/sgt2Ft-patience","jetpack_sharing_enabled":true,"_links":{"self":[{"href":"https:\/\/shorebeat.com\/brick\/wp-json\/wp\/v2\/posts\/13154","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/shorebeat.com\/brick\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/shorebeat.com\/brick\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/shorebeat.com\/brick\/wp-json\/wp\/v2\/users\/196"}],"replies":[{"embeddable":true,"href":"https:\/\/shorebeat.com\/brick\/wp-json\/wp\/v2\/comments?post=13154"}],"version-history":[{"count":0,"href":"https:\/\/shorebeat.com\/brick\/wp-json\/wp\/v2\/posts\/13154\/revisions"}],"wp:attachment":[{"href":"https:\/\/shorebeat.com\/brick\/wp-json\/wp\/v2\/media?parent=13154"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/shorebeat.com\/brick\/wp-json\/wp\/v2\/categories?post=13154"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/shorebeat.com\/brick\/wp-json\/wp\/v2\/tags?post=13154"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}