{"id":15439,"date":"2019-10-15T10:31:40","date_gmt":"2019-10-15T14:31:40","guid":{"rendered":"https:\/\/www.shorebeat.com\/brick\/?p=15439"},"modified":"2019-10-16T03:36:48","modified_gmt":"2019-10-16T07:36:48","slug":"when-did-you-know","status":"publish","type":"post","link":"https:\/\/shorebeat.com\/brick\/2019\/10\/when-did-you-know\/","title":{"rendered":"A Parent&#8217;s Autism Story: &#8216;When Did You Know?&#8217;"},"content":{"rendered":"<p><img loading=\"lazy\" decoding=\"async\" class=\"alignnone size-medium wp-image-15440\" src=\"https:\/\/www.shorebeat.com\/brick\/wp-content\/uploads\/2019\/10\/P1100528-400x533.jpg\" alt=\"\" width=\"400\" height=\"533\" srcset=\"https:\/\/shorebeat.com\/brick\/wp-content\/uploads\/2019\/10\/P1100528-400x533.jpg 400w, https:\/\/shorebeat.com\/brick\/wp-content\/uploads\/2019\/10\/P1100528-768x1024.jpg 768w, https:\/\/shorebeat.com\/brick\/wp-content\/uploads\/2019\/10\/P1100528-315x420.jpg 315w, https:\/\/shorebeat.com\/brick\/wp-content\/uploads\/2019\/10\/P1100528-640x853.jpg 640w, https:\/\/shorebeat.com\/brick\/wp-content\/uploads\/2019\/10\/P1100528-681x908.jpg 681w\" sizes=\"auto, (max-width: 400px) 100vw, 400px\" \/><\/p>\n<p>\u201cWhen did you know?\u201d<\/p>\n<p>It\u2019s a question that I\u2019ve been asked several times since my eldest son Justin\u2019s autism diagnosis fifteen years ago at the tender age of fifteen months. I don\u2019t have just one answer for this question however.<\/p>\n<p>I knew of course when the kindly developmental pediatrician told me he had PDD, was too young for a formal autism diagnosis, but I knew.<\/p>\n<p>I knew a month earlier when our not-so-kindly pediatrician shoved a bunch of articles with the word \u201cautism\u201d in the title and practically shoved me and my baby out the door at the end of our appointment.<\/p>\n<p>But truly, when did I really know? I knew at six months when he kept spinning everything in sight, still wasn\u2019t sleeping, was so unhappy so much of the time.<\/p>\n<p>I knew despite everyone telling me he was so young, he would be okay.<\/p>\n<p>To me, back then, \u201cokay\u201d meant not having autism, or having such a mild version of it that he\u2019d still have all the trappings of a normal life- independence, love, friends, a job.<\/p>\n<p>He will never have any of those things. And believe it or not, I\u2019ve mostly made my peace with this.<\/p>\n<p>I don\u2019t really see another choice if I am to live my life to its fullest and be the best mom possible. To accomplish those things, there is no other way for me to live with it.<\/p>\n<p>And to tell you the truth, even with severe autism, at this point in time he is okay.<\/p>\n<p>Sometimes, he\u2019s even great.<\/p>\n<p>Do I wish things were different? Despite making my peace there will always be a part of me wishing he will have the myriad of adult choices his brother will have. I know I\u2019ll never fully let that go.<\/p>\n<p>But I also know that way back when he was still ensconced in my womb my constant mantra was please let him be happy, and healthy. To my everlasting delight the boy who finally likes vegetables is healthy, and most days I see evidence of happy too.<\/p>\n<p>A part of me will always mourn what could have been.<\/p>\n<p>Despite this, I continue to have hope. I have seen several friends navigate the murky post twenty-one waters with their children, and so far, so good. I am five years away from this but of course (!) I\u2019ve begun thinking about his choices, what opportunities he\u2019ll have to live his best life possible.<\/p>\n<p>And to my delight, I\u2019ve found several opportunities that just might fit the bill.<\/p>\n<p>None of us knows what the future holds for our kids, or for us. But it is so important to keep the \u201chope for happy\u201d alive, to acknowledge that his story might not resemble anything I had planned, but might be wonderful for him anyway.<\/p>\n<p>And as he continues to grow and change and become a man, I will do just that.<\/p>\n<p><em>For more on my family visit my blog at autismmommytherapist.wordpress.com<\/em><\/p>\n<p><em>Follow me on Facebook at Autism Mommy-Therapist<\/em><\/p>\n<div class=\"fcbkbttn_buttons_block\" id=\"fcbkbttn_left\"><div class=\"fb-share-button fcbkbttn_large_button \" data-href=\"https:\/\/shorebeat.com\/brick\/2019\/10\/when-did-you-know\/\" data-type=\"button_count\" data-size=\"large\"><\/div><\/div>","protected":false},"excerpt":{"rendered":"<p>\u201cWhen did you know?\u201d It\u2019s a question that I\u2019ve been asked several times since my eldest son Justin\u2019s autism diagnosis fifteen years ago at the tender age of fifteen months. I don\u2019t have just one answer for this question however. I knew of course when the kindly developmental pediatrician told me he had PDD, was [&hellip;]<\/p>\n","protected":false},"author":196,"featured_media":15440,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2},"jetpack_post_was_ever_published":false},"categories":[4,12],"tags":[293,295,294,1435],"class_list":["post-15439","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-life-in-brick","category-ocean-county","tag-autism","tag-autism-acceptance","tag-autism-awareness","tag-autism-diagnosis"],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"https:\/\/shorebeat.com\/brick\/wp-content\/uploads\/2019\/10\/P1100528.jpg","jetpack_shortlink":"https:\/\/wp.me\/pgt2Ft-411","jetpack_sharing_enabled":true,"_links":{"self":[{"href":"https:\/\/shorebeat.com\/brick\/wp-json\/wp\/v2\/posts\/15439","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/shorebeat.com\/brick\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/shorebeat.com\/brick\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/shorebeat.com\/brick\/wp-json\/wp\/v2\/users\/196"}],"replies":[{"embeddable":true,"href":"https:\/\/shorebeat.com\/brick\/wp-json\/wp\/v2\/comments?post=15439"}],"version-history":[{"count":0,"href":"https:\/\/shorebeat.com\/brick\/wp-json\/wp\/v2\/posts\/15439\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/shorebeat.com\/brick\/wp-json\/wp\/v2\/media\/15440"}],"wp:attachment":[{"href":"https:\/\/shorebeat.com\/brick\/wp-json\/wp\/v2\/media?parent=15439"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/shorebeat.com\/brick\/wp-json\/wp\/v2\/categories?post=15439"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/shorebeat.com\/brick\/wp-json\/wp\/v2\/tags?post=15439"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}